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Should You Tell Someone They Have Dementia?

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A senior man looking at his son with a perplexed expression.

Recognizing that a loved one may have dementia is never easy. This stage of life can come with challenges, uncertainty, and emotions that can be overwhelming. However, early detection and open communication are crucial so a loved one can receive the proper care and support they need.

Whether you should tell someone they have dementia can depend on emotional and practical considerations and the impact of implementing strategies early to maintain and support quality of life.

What Is Dementia?

Dementia is not a single disease but a general term for a decline in cognitive function severe enough to interfere with daily life. Dementia affects memory, thinking, and social abilities.

Alzheimer’s disease is the most common type of dementia, but other types exist, such as vascular dementia, Lewy body dementia, and frontotemporal dementia. Understanding the basics of dementia can help family members and caregivers recognize the signs and symptoms, making it easier to decide when and how to communicate with their loved ones effectively.

Signs & Symptoms of Dementia

Dementia manifests in various ways, and the symptoms can differ from person to person. However, some common signs and symptoms of dementia can include:

  • Memory loss: Forgetting recently learned information, important dates, or events.
  • Difficulty planning or solving problems: Difficulty with tasks that require concentration, such as following a recipe.
  • Confusion about time and place: Losing track of dates and time.
  • Trouble understanding visual images and spatial relationships: Difficulty reading and judging distance.
  • Problems with words in speaking or writing: Difficulty following or joining a conversation, repeating themselves, or having trouble finding the right word.
  • Misplacing things: Putting items in unusual places and being unable to retrace steps to find them.
  • Poor judgment: Making poor decisions, particularly with money or personal care.
  • Withdrawal from work or social activities: Avoiding work, social activities, or hobbies they once enjoyed.
  • Changes in mood and personality: Becoming confused, suspicious, depressed, fearful, or anxious.

Should You Tell Someone They Have Dementia?

Whether you choose to tell someone they have dementia or not can depend on several things. However, if a loved one asks if something is wrong, you can be honest and give them more information if they wish to know.

Emotional Considerations

Informing someone they have dementia is a deeply emotional decision. It’s natural to worry about how they will react and the impact on their mental and emotional well-being.

Because dementia is a progressive disease, loved ones can experience a decrease in emotional control and language skills, and feelings of fear, confusion, and sadness are common. However, it’s important to weigh these emotions against the benefits of early communication.

Practical Considerations

From a practical standpoint, knowing the diagnosis allows the individual and their family to plan for the future. Early communication can lead to better management of the condition, access to appropriate medical care, and the opportunity to make informed decisions about living arrangements and legal matters.

Impact of Early Communication

Early communication can also foster a sense of control and empowerment for both the individual with dementia and their caregivers. It allows for the implementation of strategies to maintain independence and quality of life for as long as possible. Additionally, it opens the door to support networks and resources, which can be invaluable during this challenging time. With early diagnosis, individuals can access treatments and therapies that may slow the progression of the disease. 

For caregivers, early communication and intervention means access to resources and support systems that can alleviate the challenges of caregiving. It allows for better planning, reduces stress, and improves the overall quality of care for loved ones with dementia.

How to Tell Someone They Have Dementia

An older adult sitting on a couch with both hands on her forehead with her adult child next to her reassuring putting her hand on her back.

Approaching the conversation about dementia requires sensitivity and preparation, preferably from a physician. However, if an adult child or family member needs to tell a loved one they have dementia, here are some practical tips:

  • Choose the right time and place: Select a quiet, comfortable setting without interruptions. Make sure your loved one feels safe and relaxed.
  • Be honest and compassionate: Use simple, straightforward language. Acknowledge a loved one’s feelings and reassure them of your support.
  • Use “I” statements: Frame your concerns from your perspective. For example, “I’ve noticed that you seem to be having trouble remembering things lately, and I’m worried about you.”
  • Active listening: Encourage your loved one to express their thoughts and feelings. Listen without interrupting and validate their emotions.
  • Repeat and reassure: A loved one may need to hear the information again. Be patient and provide reassurance each time.
  • Seek professional guidance: Consider involving a healthcare professional who can provide additional support and information.

Professional Help

Professional services, such as geriatric care managers and dementia care specialists, can provide personalized guidance and support. These professionals can help create care plans, coordinate medical care, and connect families with appropriate resources, such as memory care programs in senior living communities.

Personalized Memory Care for Loved Ones

Recognizing the signs of dementia, early detection, and deciding whether to inform your loved one is crucial for making sure they receive the right care and support. Remember, you don’t have to face this journey alone.

Contact The Terrace at Chestnut Hill for support and resources available to assist you every step of the way to help you navigate dementia diagnosis in a loved one. 

Written by
Christina Dolan

More Articles By
Christina Dolan
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